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LifeSPAN Newsletter

Lifetime Secure Personal Assistance Network

December 2007

Greetings!

Welcome to the Holiday Season! LifeSPAN networks are enjoying cookie baking, choirs and singing, holiday movies, and time with family and friends. Hope you are too!

In this issue

·  7 Steps Workshops in 2008

·  Featured Network: Anna's Network

·  Marilyn's Story

·  Thanks for Your Support in 2007!

·  Introduction to LifeSPAN - January 13

 

Featured Network: Anna's Network

Anna and network member at LifeSPAN BBQ at Golden Gardens, July, 2007

"No disability precludes relationships"

I heard this quote from a LifeSPAN forum I once attended. It has been the foundation of my commitment to LifeSPAN and my belief in helping establish a network for my daughter, Anna. It is hard to believe that a year has passed since our first network meeting, but it has and we celebrated its anniversary on October 14th. The first year seemed to go slow. We had a bit of a minor setback in losing our facilitator early on. But LifeSPAN was right there for us and found a wonderful replacement in Leslee Currie. And now looking back, I begin to see the sprouts from the seed of the network/relationship that has been planted.

Anna communicates in subtle ways: a sweet smile for yes, a scrunch of her nose for no, lifting her head with acknowledgement, a slight raise of her hand to say hello, a peripheral gaze. It is not always easy to determine what she is communicating and people sometimes have a difficult time connecting with her. Life before the network was comfortable for Anna, but a bit isolated. Through the meetings members have gotten to know Anna better. She now has a community of friends that also contribute to her life, have taken an interest in it and have concern for her well-being. I have noticed members having a special bond with Anna that they didn't have before.

Sixteen wonderful people have come together for four meetings so far, one every three months. We brainstorm ways to enhance Anna's life, celebrate, and because of Anna's love of music have now started singing together at the meetings. Members have established great ways to correspond: a wonderful newsletter that is emailed to everyone, a beautiful profile of Anna on myspace where members can read about Anna's interests and a calendar to see what she is up to amongst other things, and a phone reminder to help remind busy members about the next meeting. Relationships have even blossomed and deepened amongst members too. With this establishment of communication, information, and community, members are more easily able to be a part of Anna's life. Ideas are forming about finding musicals and activities that Anna will enjoy, understanding Anna's life and ways members can be a friend.

There will probably be set-backs along the way but I have faith that Anna's network will continue to grow thru the years because of the foundation that has been laid, the relationships that have been nurtured. We are indeed grateful. We should all be lucky enough to have our own network that gathers regularly to celebrate our lives with relationship.

written by Julie, Anna's Mom, 11/2007

Read the story and view more pictures...

 

Marilyn's Story

Marilyn at LifeSPAN Cookie Baking Dec 8, 2007A Pacific Northwest native, I grew up in Auburn, graduated from WSU, UW PhD and am a professor emerita of Biochemistry from the West Virginia University School of Medicine in Morgantown. Returning to Seattle upon retirement I am delighted to be "home".

I was curious about LifeSPAN because I wanted to learn whether some of the LifeSPAN principles might be helpful to other people needing living assistance. After attending some public events, including a showing of "The Tie That Binds," I attended the organizational meeting for David's network. I discovered that among David's numerous interests I share his interest in food and music and that I could easily include him in some of my usual activities, so I volunteered to join David's network. I am happy to report that I have met many interesting people, shared some great food and listened to some excellent music.

Read Marilyn's Story

 

Thanks for Your Support in 2007!

2007 has been a year of tremendous growth for LifeSPAN. As we close 2007 we now have over a dozen personal networks of support surrounding individuals whose disabilities might have led to isolation. These networks are focused on a common cause which is to create a good life for these individuals with disabilities and their families as they move forward with their own personal dreams for the New Year and beyond. It is an honor for us to work with these networks and to watch them grow.

Safety and security through relationships is an ideal that is central to the LifeSPAN mission. As we mature as an organization it becomes increasingly clear to us that we are first and foremost a community.

The LifeSPAN community has many supporters. We are grateful to our network facilitators who help to create our networks and keep them connected, to the network members who have found space in there lives to enjoy the music of different drummers, to our facilitator coordinator, Michele, who has brought a high level of passion and professionalism to her role and who will be missed as she steps aside at year's end.

We are thrilled to have received generous financial support this year from several foundations and numerous individuals for which we are profoundly grateful. These contributions have supported our growth and have allowed us to establish our first endowed network - one which is transforming the life of the person at its center.

We end this year with a deep sense of appreciation for the joy that community brings to all of us and we wish you all a good life in the year and years to come.

 

Introduction to LifeSPAN - January 13

LifeSPAN logoFor over three years, Mom (Kathy Sellars) and I have been holding these monthly "Introduction to LifeSPAN" gatherings at Jackson Place Cohousing in Seattle. We've met so many interesting families -- many of whom have begun taking steps to join LifeSPAN as lifetime members after attending one of these free informational sessions.

If you've been thinking about LifeSPAN, but are not sure if it's for you or if now's the time, we invite you to stop by our next introductory session. We listen, we talk, we share. We find that each time we tell the LifeSPAN story and share the experiences of our family and others we become more convinced of the value of this work.

Hope to see you! (And be sure to RSVP if you're coming so we can meet you at the door.)

Best, Michele Anciaux Aoki, Kathy's daughter and Dina's facilitator

Our next session is scheduled for Sunday January 13, 2008 from 3-4 pm at Jackson Place Cohousing 800 Hiawatha Place S. Seattle, WA 98144, one block east of Rainier Ave, at Dearborn.

To help us with planning, please RSVP to Kathy (206) 522-3099 or email (kathy@lifespan-wa.org) if you're planning to come.

Print driving directions (PDF).

 

Join LifeSPAN and Receive "A Good Life"

A Good Life book

Your $60 Associate Membership in LifeSPAN entitles you to a free copy of the excellent planning book, A Good Life for You and Your Relative with a Disability by PLAN co-founder, Al Etmanski, or a copy of the "Ties That Bind" DVD, which includes the KCTS program "Beyond The Ties That Bind" featuring LifeSPAN families, facilitators, and board members.

Why Join?

When you join LifeSPAN as an Associate Member, you validate the work we are doing to pave a path of hope for individuals with disabilities who may outlive their families, yet deserve to be surrounded by caring people who will help them experience "a good life." LifeSPAN is a pioneer -- the only organization that serves this mission in the United States. Your support, and especially your membership, make a difference to LifeSPAN.

Send in your membership form today...

 

7 Steps Workshops in 2008

 
LifeSPAN is planning two new series of 7 Steps Workshops in Seattle and on the Eastside this winter.

If you're interested, contact Linda Davidson. Email linda@lifespan-wa.org or phone (206) 632-8193.

Find out more...

 

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